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- Tumour banks: well-guarded treasures in the interest of patients.Nat Rev Cancer. 2003; 3: 73-77
- No consent should be needed for using leftover body material for scientific purposes.BMJ. 2002; 325: 648-651
- One-time general consent for research on biological samples: opt out system for patients is optimal and endorsed in many countries.BMJ. 2006; 332: 665
- Consent to using human tissue.BMJ. 2003; 327: 759-760
- Ownership and uses of human tissue: what are the opinions of surgical in-patients?.J Clin Pathol. 2008; 61: 322-326
- One-time general consent for research on biological samples.BMJ. 2006; 332: 544-547
- Research on stored biological samples: views of African American and White American cancer patients.Am J Med Genet A. 2006; 140: 733-739
- DNA databanks and consent: a suggested policy option involving an authorization model.BMC Med Ethics. 2003; 4: E1
- Cancer patients’ attitudes toward future research uses of stored human biological materials.J Empirical Res Human Res Ethics. 2007; 2: 15-22
- Obtaining explicit consent for the use of archival tissue samples: practical issues.J Med Ethics. 2004; 30: 561-564
- TuBaFrost 3: regulatory and ethical issues on the exchange of residual tissue for research across Europe.Eur J Cancer. 2006; 42: 2914-2923
- Coding and consent: moral challenges of the database project in Iceland.Bioethics. 2004; 18: 27-49
- Governing UK Biobank: the importance of ensuring public trust.Trends Biotechnol. 2004; 22: 284-285
- Confidentiality in genome research.Science. 2008; 305: 441-442
OECD. Draft guidelines for Human Biobanks and Genetic Research Databases; 2008.
Dutch Act on the Medical Treatment Contract. <http://www.dutchdpanl/documenten/en_inf_subj_Confidentiality_Medical_Data.shtml> 2008 September 25 2008.
Federation of Medical Scientific Societies. Code for Proper Use of Human Tissue. Code for Proper Secondary Use of Human Tissue in the Netherlands. Rotterdam: Federation of Medical Scientific Societies (FMWV); 2002.
- Genetic research with stored human tissue; a coding procedure for optimal use of information and protection of privacy (comment).Ned Tijdschr Geneesk. 2004; 148 ([in Dutch]): 1263
- Genetic research with stored human tissue: a coding procedure with optimal use of information and protection of privacy.Ned Tijdschr Geneeskd. 2004; 148: 564-568
- Breast cancer survival and tumor characteristics in premenopausal women carrying the CHEK2∗1100delC germline mutation.J Clin Oncol. 2007; 25: 64-69
Schmidt MK, Vermeulen E, Tollenaar RAEM, Veer Lv’t, Leeuwen FEv. Regulatory aspects of genetic research with residual human tissue: effective and efficient data coding. Submitted for publication.
- Why surgical patients do not donate tissue for commercial research: review of records.BMJ. 2003; 327: 262
- Informed consent for genetic research on blood stored for more than a decade: a population based study.BMJ. 2002; 325: 634-635
- Experiences from the front line – routine consenting of surplus surgically removed tissue. Without investment by the NHS fully informed consent for all is not available.J Clin Pathol. 2007; 60: 351-354
- High rate of consent to bank biologic samples for future research: the Eastern Cooperative Oncology Group experience.J Natl Cancer Inst. 2002; 94: 769-771
- Research with stored biological samples: what do research participants want?.Arch Intern Med. 2005; 165: 652-655
- Patients’ views on residual blood use for research purposes.Jpn J Cancer Res. 1998; 89: 341-345
- Consent gained from patients after breast surgery for the use of surplus tissue in research: an exploration.J Med Ethics. 2007; 33: 229-233
- Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think?.Eur J Public Health. 2005;
- Consent for genetic research in a general population: an update on the National Health and Nutrition Examination Survey experience.Genet Med. 2006; 8: 354-360
- Ownership and uses of human tissue: does the Nuffield bioethics report accord with opinion of surgical inpatients?.BMJ. 1996; 313: 1366-1368
- Public perceptions of the collection of human biological samples.Medical Research Council, 2000
- Patients’ perspective of pathology specimens. A prospective study.J Clin Pathol. 2005; 58: 891-893
- The incidentalome. A threat to genomic medicine.JAMA. 2006; 296: 212-215
- The law of incidental findings in human subjects research: establishing researchers’ duties.J Law Med Ethics. 2008; 36 (214): 361-383
- Managing incidental findings in human subjects research: analysis and recommendations.J Law Med Ethics. 2008; 36 (211): 219-248
- Empirical analysis of current approaches to incidental findings.J Law Med Ethics. 2008; 36 (211): 249-255
- Genomic research and incidental findings.J Law Med Ethics. 2008; 36 (212): 292-297
- Recruiting patients to medical research: double blind randomised trial of “opt-in” versus “opt-out” strategies.BMJ. 2005; 331: 940-944
- Foresight committee on multifactorial diseases in the genomics age. Multifactorial diseases in the genomics age.Koninklijke Nederlandse Akademie van Wetenschappen, Amsterdam2006
- Trends in ethical and legal frameworks for the use of human biobanks.Eur Respir J. 2007; 30: 373-382
- Gene expression in fixed tissues and outcome in hepatocellular carcinoma.New Engl J Med. 2008; 22: 22