Abstract
Specialist Palliative Care's involvement in adolescent cancer is relatively new. The
challenges are not so much to do with the technicalities of symptom control, but in
walking the fine line with patients and families as they wrestle with transitions
into an adulthood that will not happen and attempts to pack a lost future into a few
months or years whilst coping with arduous and often futile treatments that attempt
to buy some more time. The article explores some underlying principles and the model
of care that has emerged at this specialist centre for adolescent care.
Keywords
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References
- Oxford Textbook of Palliative Medicine.3rd ed. Oxford University Press, Oxford2003
- Symptom Management in Advanced Cancer.3rd ed. Radcliffe Medical Press, Oxford2001
Twycross R, Wilcox A. Palliative Care Formulary 2003, 2.
- Care of the Dying Child.Oxford University Press, Oxford1998
- Growing up with a Chronic Illness: The Impact on Children & Their Families.Jessica Kingsley, London1993
- Non-Physical Pain: Suffering in action.in: Miles A. Finlay I. The Effective Management of Pain & Other Distressing Symptoms. Aesculapias Medical Press, London2003
- Anxiety and depression in adolescent cancer.Eur. J. Cancer. 1997; 33: 1250-1255
- Family grief therapy.Psycho-Oncology. 1998; 7: 14-25
- Family members’ perceptions of palliative cancer care.J. Palliative Care. 1996; 12: 10-20
- Social skills and psychological adjustment of child and adolescent cancer survivors.Psycho-Oncology. 2000; 9: 113-126
- Posttraumatic stress disorder and family functioning in adolescent cancer.J. Traumatic Stress. 1998; 11: 205-221
- Addressing spirituality in pediatric hospice and palliative care. [Review] [55 refs].J. Palliative Care. 2002; 18: 59-67
- The child with cancer. Influence of culture on truth-telling and patient care.Ann. N.Y. Acad. Sci. 1997; 809: 197-210
- Families in palliative care.Int. J. Palliative Nursing. 2003; 9 ([review+37 refs]): 113-119
- Truth may hurt but deceit hurts more.Palliative Med. 2002; 16: 297-303
- Characteristics of adolescent cancer survivors who pursue postsecondary education.Cancer Nursing. 2000; 23: 468-476
House of Lords. Gillick v West Norfolk and Wisbech Health Authority 1985 [3 All England Law Reports 402]. London, House of Lords, 1985.
Re W (a minor) (medical treatment) [1992] 4 All English Reports 627, (1992) 9 British Medical Law Reports 22 (CA). 2003.
- Consent by Others. Medical Law.Butterworths, London1994 (, 252–396)
Cardoso J. Schloendorff v Society of New York Hospital. [211 NY 125]. 1914.
George R., Martin J. Suffering: a user friendly analysis. In Miles A, Finlay I, editors. Non-Physical Pain in UK Key Advances in Clinical Practice series 3: The Effective Prevention and Control of Cancer Pain. 2003.
- Development of a Shared Care Programme for Children with Cancer.J. Cancer Nursing. 1997; 1: 147-150
- A model of palliative care for the adolescent with cancer.Int. J. Palliative Nursing. 2001; 7: 485-488
- Teamworking.in: Sykes N. Fallon M.T. Patt R.B. Cancer Pain. Arnold, London2003: 95-104
Article info
Publication history
Accepted:
September 17,
2003
Received in revised form:
September 17,
2003
Received:
September 12,
2003
Identification
Copyright
© 2003 Published by Elsevier Inc.
